Neurofibromatosis Clinic

Our mission is to provide expert opinions, treatment and care for people who have a confirmed or possible diagnosis of neurofibromatosis or similar disorders.

Why choose Henry Ford Health for neurofibromatosis care?

Henry Ford Health provides comprehensive care for children and adults with neurofibromatosis. We are Michigan’s only neurofibromatosis program recognized by the Children’s Tumor Foundation (CTF) for excellence in multidisciplinary care.

The Henry Ford Health difference

We focus on the unique challenges faced by people with neurofibromatosis and their families.

• Neurofibromatosis and schwannomatosis are complex, lifelong genetic conditions that can affect the brain, spine, nerves, skin and other organs—requiring highly specialized expertise for accurate diagnosis and coordinated management.
• Patients have access to advanced therapies, including clinical trials and emerging treatments, with a care plan tailored to their specific condition, symptoms and goals.
• Your care is guided by a dedicated neurofibromatosis specialist who serves as the central point of coordination, connecting you to an experienced, disease-focused team across multiple specialties to ensure seamless, comprehensive support.

Learn more about our Neurofibromatosis Clinic

Below you will find additional resources, facts and information about neurofibromatosis to help you get the care you need.