Section Menu

PERC Publications

D’Agostino, S., Santarossa, S., Peltz, C., Coyne, P. Framing online reactions to FIFA's anterior cruciate ligament-menstrual cycle study announcement: A multi-platform social media analysis. Digital Health. 2026  Peer-reviewed Manuscript
Gyan, O. A., Sitarik, A., Kippen, K., Santarossa, S., Resnicow, K., Miree, C., Joseph L.M. C. Racial Factors Associated with Intent to Receive the COVID-19 Vaccine Among a Convenience Sample of Black/African American Adults Early in the Pandemic. Journal of Racial and Ethnic Health Disparities 2026 Peer-reviewed Manuscript
Coyne, P., Gough P., Santana-Garcés M., Susick, L., Schultz, L., Rice, S., Brewster, N., Zreik, M., Behrendt R, Bilicki V and Santarossa, S. (2026) A case study from a senior care navigator program: helping older adults address health and social care needs. Front. Public Health 14:1771025. doi: 10.3389/fpubh.2026.1771025 2026 Peer-reviewed Manuscript
Santarossa, S., Redding, A., Copeland, L., Murphy, D., Maddox, H., Clemmons-Lloyd, K., Cummings, K., Doyle, J., Kesavan, S., Mitchell, V., Riley, D., Stechison, L., and Amy Loree. Empowering Patient Partners: Training for Meaningful Engagement in Research. Abstracts from the 2025 Health Care Systems Research Network (HCSRN) annual conference, St. Louis, Missouri. J Patient Cent Res Rev. 2025;12:148-203. 10.17294/2330-0698.2220 2025 Published Abstract
Coyne, P, Jennings, M.B., Santarossa, S., Murphy, D., Zreik, M., Bryans, H., Drake, C., Walch, O., and Cheng, P. (2025). Using Night Shift Worker and Employee Health Stakeholder Perspectives to Inform the Development of ArcashiftTM, a Digital Behavioral Circadian Medicine Intervention for Shift Work Disorder. Abstracts from the 2025 Health Care Systems Research Network (HCSRN) annual conference, St. Louis, Missouri. J Patient Cent Res Rev. 2025;12:148-203. 10.17294/2330-0698.2220 2025 Published Abstract
Zreik M., Redding A., Santarossa, S. From Engagement to Evidence: A Scoping Review of Qualitative and Quantitative Measures of Adult Patient Engagement in Research. Abstracts from the 2025 Health Care Systems Research Network (HCSRN) annual conference, St. Louis, Missouri. J Patient Cent Res Rev. 2025;12:148-203. 10.17294/2330-0698.2220 2025 Published Abstract
Pflaum-Carlson, J., Redding, A., Murphy, D., MacLean, L., Hamilton, J., and Santarossa, S. (2025). Recruitment, retention and recouperation: lessons learned from a study aimed at assessing burnout mitigation in physician learners. BMC Research Notes, 18(1), Article 376. https://link.springer.com/article/10.1186/s13104-025-07435-5 2025 Peer-reviewed Manuscript
Santarossa, S., Haley, E. N., Coyne, P., Pappas, C., Braciszewski, J. M., Miller-Matero, L. R., Zreik, M. and Loree, A. (2025). Equity-focused barriers and facilitators to implementing a prenatal yoga intervention in a healthcare system: patient and provider perspectives. BMC Pregnancy and Childbirth, 25(1), 1197. 2025 Peer-reviewed Manuscript
Coyne, P., Copeland, L., Murphy, D., Redding, A., Johnson, C. C., Kippen, K. E., and Santarossa, S. (2025). The Patient Engaged Research Center's Sustainable Funding Framework: A Path Towards Sustainable Patient Engagement in Care and Research Within a Health System. Learning Health Systems, e70047.
 2025 Peer-reviewed Manuscript
Redding, A., Coates, D., Cassidy-Bushrow, A. E., Straughen, J. K., and Santarossa, S. (2025). Activity tracking devices in pregnancy: Understanding the participant experience in a longitudinal birth cohort. Women's Health, 21, 17455057251344388.
 2025 Peer-reviewed Manuscript
Santarossa, S., Blake, R. A., Buchanan, H., Price, M., Guzzardo, R., Guzzardo, C., Johnson, L. M., Morshall, J., Bate, A., Bate, W., Copeland, L., Redding, A., Murphy, D., Loree, A. (2025). Beyond the Status of Health: A Collection of Stories Representing Diverse Maternal Mental Health Perspectives. Journal of Patient-Centered Research and Reviews, 12(1), 35.
 2025 Peer-reviewed Manuscript
Santarossa, S., Austin, B., Bell, M. A., Henry, S. C., Inclima, A., Maddox, H., Smith, T. G., Copeland, L., Redding, A., Murphy, D., Loree, A. (2025). The Art of Resiliency: Patient Stories of Maternal Mental Health Experiences. Journal of Patient-Centered Research and Reviews, 12(2), 87.
 2025 Peer-reviewed Manuscript
Redding, A., Copeland, L., Murphy, D., Clemmons-Lloyd, K., Cummings, K., Doyle, J., Kesavan, S., Mitchell, V., Riley, D., Stechison, L., and Santarossa, S. (2025). Bridging the gap: empowering patients as research partners through a structured training program. Research Involvement and Engagement, 11(1), 17.
 2025 Peer-reviewed Manuscript
Santarossa, S., Redding, A., and Murphy, D. (2025). Living with Long COVID-19: A Virtual Body Mapping Study. American Journal of Qualitative Research, 9(2), 42-61
 2025 Peer-reviewed Manuscript
Zreik, M., Redding, A., and Santarossa, S. (2025). From engagement to evidence: a scoping review of qualitative and quantitative measures of adult patient engagement in research. Research Involvement and Engagement, 11(1), 136.
 2025 Peer-reviewed Manuscript
Coyne, P., Leone, R., Meng, Z., Leach, R., Santarossa, S. (2024). Exploring the Associations Between Age Related Decline in Anti-Mullerian Hormone and Levels of Physical Activity in the All of Us Research Program. International Journal of Medical Students.
 2025 Peer-reviewed Manuscript
Coyne, P., Jennings, M.B., Santarossa, S., Murphy, D., Zreik, M., Bryans, H., Drake, C., Walch, O., & Cheng, P. (2025). Using Night Shift Worker and Employee Health Stakeholder Perspectives to Inform the Development of ArcashiftTM, a Digital Behavioral Circadian Medicine Intervention for Shift Work Disorder. BMC Digital Health.
 2025 Peer-reviewed Manuscript
Santarossa, S., Baber, M., Hussein, J., Oley, C., Slangerup, K., Murphy, D., and Kippen, K. E. (2024). Using action research and a community-academic partnership to understand clinical trial participation: a patient-centered perspective. Research Involvement and Engagement, 10(1), 61.
 2024 Peer-reviewed Manuscript
Coyne, P., Susick, L., Schultz, L., Santarossa, S., Gough, P., Rice, S., and Bilicki, V. (2024). Using Care Navigation to Improve Patient-Reported Outcomes Among Older Adult Patients: Preliminary Results From a Pilot Study. Journal of Patient Experience, 11, 23743735241272152.
 2024 Peer-reviewed Manuscript
Lockhart, E., Gootee, J., Copeland, L., & Turner, D. (2024). Willingness to Be Contacted via a Patient Portal for Health Screening, Research Recruitment, and at-Home Self-Test Kits for Health Monitoring: Pilot Quantitative Survey. JMIR Formative Research, 8, e59837.
 2024 Peer-reviewed Manuscript
Hecht, L.M., Adams, R., Dutkiewicz, D., Radloff, D., Wales, M.N., Whitmer, J., Murphy, D. and Santarossa, S. (2023). “Healing can be a Very Jagged Line:” Patient Reflections on Life as a COVID-19 Long Hauler. Journal of Patient-Centered Research and Reviews. 2023;10:77-81.
 2023 Peer-reviewed Manuscript
Redding, A., Santarossa, S., Sagong, C., Kalmbach, D. A., Drake, C. L., Casement, M. D., & Cheng, P. (2023). “Life will never be the same”: a qualitative analysis of the impact of COVID-19 on adults with a history of insomnia. Sleep Advances, 4(1), zpad046.
 2023 Peer-reviewed Manuscript
Santarossa S., Redding A., and Murphy, D., (2023). Pioneering Virtual Body Mapping: A Methodological Guide for Researchers Using a Health-Affected Population as an Example. American Journal of Qualitative Research, 7(2), 73-88.
 2023 Peer-reviewed Manuscript
Redding, A., Santarossa, S., Murphy, D., Udumula, M. P., Munkarah, A., Hijaz, M., and Rattan, R. (2023). A patient perspective on applying intermittent fasting in gynecologic cancer. BMC Research Notes, 16(1), 190.
 2023 Peer-reviewed Manuscript
Cheng, P., Santarossa, S., Kalmbach, D., Sagong, C., Hu, K., and Drake, C. (2023). Patient perspectives on facilitators and barriers to equitable engagement with digital CBT-I. Sleep health, 9(5), 571-578.
 2023 Peer-reviewed Manuscript
Santarossa S., Rapp A., Murphy D., and Hussein, J. (2022). The patient perspective on COVID-19 restrictions lifting: a descriptive study of resuming in-person meetings. Journal of Covid Research and Treatment. 1(1). 10.58489/JCRT.002.
 2022 Peer-reviewed Manuscript
Santarossa, S., Rapp, A., Sardinas, S., Hussein, J., Ramirez, A., Cassidy-Bushrow, A. E., and Yu, E. (2022). Understanding the# longCOVID and# longhaulers conversation on Twitter: Multimethod study. Jmir Infodemiology, 2(1), e31259.
 2022 Peer-reviewed Manuscript
Olden, H. A., Santarossa, S., Murphy, D., Johnson, C. C., & Kippen, K. E. (2022). Bridging the patient engagement gap in research and quality improvement utilizing the henry ford flexible engagement model. Journal of Patient-Centered Research and Reviews, 9(1), 35.
 2022 Peer-reviewed Manuscript

Cookie Consent

We use cookies to improve your website experience. By using this site, you agree to our Terms of Use. Read our Internet Privacy Statement  to learn what information we collect and how we use it.

Accept All
Dismiss