Neuromyelitis Optica Spectrum Disorder (NMOSD)

Neuromyelitis optica is rare and causes symptoms similar to — but often more severe than —multiple sclerosis. Henry Ford Health offers uncommon expertise and hope for healing. We are among the few programs in the region with in-depth experience with this disorder. You receive an accurate diagnosis and timely treatments that protect your well-being.

What is neuromyelitis optica spectrum disorder?

NMOSD (also known as Devic disorder) is a neuroinflammatory disorder that occurs when the immune system attacks the nervous system. Attacks can permanently damage the eyes, spinal cord or brain tissue. The condition is challenging to diagnose and treat, which is why care from knowledgeable experts like ours is essential. Effective treatment lowers the risk of future NMOSD attacks and complications.

Devic disorder symptoms

Symptoms from an NMOSD attack can stop you in your tracks. They include:

• Dizziness and balance issues
• Eye issues such as blurry or double vision and blindness
• Facial pain or paralysis
• Incontinence, issues with bladder and bowel control
• Muscle weakness, pain or unusual tightness (spasticity)
• Nausea and vomiting

Neuromyelitis optica care at Henry Ford: Why choose us?

You receive services from neurologists who specialize in inflammatory disorders and offer the highest level of care. Our depth of experience from regularly treating this condition leads to an accurate diagnosis and the most effective therapies for your needs. We deliver timely care that helps you get relief when attacks strike and additional services that help you feel your best.

NMOSD evaluation

An essential component of the evaluation is ruling out neurologic conditions that mimic NMOSD. Henry Ford offers all the assessments you need. Evaluations start with physical and neurological exams followed by:

• Blood tests check for proteins (antibodies) consistent with NMOSD.
• MRIs screen for signs of damage to brain and spinal cord tissue.

If you do not test positive for the antibodies, you still could have neuromyelitis optica. We run additional studies, like a lumbar puncture to assess spinal fluid or biopsy to evaluate a brain tissue sample.

Treatments for neuromyelitis optica spectrum disorder

There are many medications for Devic disorder. Our experienced specialists select the correct option for your needs.

• Steroids and other anti-inflammatories work quickly to quiet NMOSD attack symptoms and reduce the risk of permanent damage.
• Immune-suppressing drugs (immunosuppressants) quiet immune system activity to prevent future attacks and reduce their severity.

They may also reduce your body’s ability to fight infection or increase the risk of tumors. We discuss all possible risks before you start therapy and answer your questions. Periodic blood tests enable us to catch the early signs of these issues and make changes to your treatment plan.

Care from additional specialists

Services from additional specialists help you get relief from stubborn symptoms and avoid complications:

• Neuro-ophthalmologists monitor and treat damage affecting the optic nerve.
• Pain medicine doctors perform procedures that help you get relief from stubborn pain.
• Physical medicine and rehabilitation doctors (physiatrists) help you access therapies that relieve spasticity.
• Physical therapists guide you through exercises to reverse arm and leg weakness.
• Rheumatologists care for people with additional autoimmune disorders, such as lupus or Sjögrens syndrome.
• Urologists address complications affecting your bladder, kidneys or adrenal glands.

Robust support from nurses

Our team includes a dedicated nurse who helps you have a seamless experience. They coordinate the tests you need and work with your insurance to obtain prompt approvals for medications. For severe symptoms that prevent you from working, we help you complete paperwork for government assistance programs.

If you have questions between appointments, they help you get answers. Anything that’s concerning to you matters to us. You can reach out to us by phone or posting a message in MyChart.

Contact us

Learn more about NMOSD care. Call us at (800) 436-7936 or request an appointment.